Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative

Dominique Pougheon Bertrand (1) , Guy Minguet (2, 3, 4) , Pierre Lombrail (1) , Gilles Rault (5)

1 LEPS - Laboratoire Educations et Pratiques de Santé
2 LEMNA - Laboratoire d'économie et de management de Nantes Atlantique
3 IMT Atlantique - SSG - Département Sciences sociales et de gestion
4 CGS i3 - Centre de Gestion Scientifique i3
5 CRCM - Centre de Ressources et de Compétences de la Mucoviscidose

Background: An agreement, signed in 2007 by the 49 French Cystic Fibrosis Centers, included a commitment to participate, within the next 5 years, in a care quality assessment and improvement program (QIP). The objective was to roll out in the French Cystic Fibrosis (CF) care network a QIP adapted from the US program for Accelerating Improvement in Cystic Fibrosis Care developed by The Dartmouth Institute Microsystem Academy (TDIMA) and customized by the US CF Foundation between 2002 and 2013. Methods: The French national team at the Nantes-Roscoff CF Center of Expertise was trained at TDIMA and visited US CF centers involved in US Learning and Leadership Collaboratives (LLCs). It introduced the PHARE-M QIP in France by transposing the Action Guide and material. A PHARE-M LLC1 including seven centers, underwent two external assessments. Adjustments were made, then a PHARE-M LLC2 was rolled out at seven more centers in two regions. On-site coaching was strengthened. The teams' satisfaction was assessed and further adjustments were made. In 2014, the program sought recognition as a continuing education program for healthcare professionals. Results: Ninety-six trainees including 14 patients/parents from the 14 CFCs volunteered to participate, test and adapt the program during LLC1 and LLC2 sessions. Comparison of patient outcomes collected in the Registry report by CF center, reflection on potential best practices, selection by each team of an improvement theme, implementation of improvement actions, and exchanges between teams fostered the adhesion of the teams. The program strengthened quality of care, interdisciplinary functioning and collaboration with patients/parents at the centers. The satisfaction expressed by the teams increased over time. A post-PHARE-M cycle maintains the focus on continuous quality improvement (CQI). In 2015, PHARE-M was recognized as a continuing professional development program in healthcare.

Domaines: Sociologie

Dominique Pougheon Bertrand, Guy Minguet, Pierre Lombrail, Gilles Rault. Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative. Orphanet Journal of Rare Diseases, 2018, 13 (S1), ⟨10.1186/s13023-017-0745-7⟩. ⟨halshs-02071271⟩